...Our first child was born, with Anencephaly.
If you've never heard of Anencephaly, you are not alone. My spell check doesn't recognize the word.
A little more than 5 years ago, I had never heard of it either.
When the ultrasound technician said the word to me, I didn't know what it meant.
If you Google the word, the main thing you will get is cold medical terminology. You may find out that some very educated people don't think that anencephalic babies have any life in them. There is a lot you can read & lot you probably shouldn't read. If you are searching for information about Anencephaly, I think the only place you need to go is Anencephaly.info
During the bittersweet months of being pregnant with our son, Gabriel, we learned a lot about life- even more about its preciousness. He was so active & lively. He was crazier in utero than his younger siblings. Sometimes it was like he was break dancing. Or practicing gymnastics.
Anencephaly is always fatal. That is a factual truth. But, prior to the death, there was life. Our baby was alive. He even held on through the hardship of being born.
We welcomed a child into this world, 5 years ago.
We even received a note of congratulations.
Gabriel Scott Adams was alive; even if for only a few minutes after birth.
If you are carrying a baby diagnosed with Anencephaly, I would love to talk with you. Or maybe you gave birth & have already had to say good bye to your baby. If you want to talk to someone, let me know.